The system blows.

I'm one of those people who gets ridiculously annoyed if you don't bother to return a simple phone call. St Joe's hospital - I'M SPEAKING ABOUT YOU. Call me crazy, but I think it's relatively important to call back the woman who has left you 10 (TEN!!) voicemails regarding her daughter and her need for physical therapy. I kept my cool for the first week. Calling that hospital to set up appointments is next to impossible, so I knew realistically it would take at least a week or MAYBE even two for them to get on the ball. Needless to say - they NEVER called me back. Not even a 'Hey we got your message, and we are SUPER busy, so we'll add Alexa to the list and will let you know when to come on in.' I've seen those girls who answer the phones there during our bimonthly neurodevelopment appointments. They sit on their cell phones and let the hospital phones ring til they go to voicemail. Unreal.

I called NJ Early Intervention. Lovely people that run that program, seriously. They called me back in less than 24 hours. I had people at my house to evaluate Alexa within a week! That says a lot right there about how the state run program works better than the Catholic hospital. However. It's been 3 weeks as of tomorrow since they were here. I should have heard back from them. I called. I left a message. I got no return call. I'm not happy. I plan to call tomorrow, every hour on the damn hour if need be. I'm threw playing nice.

My 19 month old CANNOT walk and CANNOT stand without support. Methinks this screams HELP HER yet no one seems to listen. I've done all I can personally do to help her. I exercise her legs. I help her try to walk. I don't know what more to do short of showing up at the offices where Early Intervention is located and demanding to speak to someone. I'm just above and beyond frustrated. Tomorrow, I will have answers and WILL somehow find someone who truly wants to help my daughter. End of story.

Beauty Take 2

 

 

 

Beauty.

 

 

 

 

Challenge.

I'm back to blogging, daily if I can. Here's to hoping that the little shit I am raising, her father and whatever else seems to keep popping up stops doing that so I can actually sit down and enjoy doing this again. I have tons to say, and no time to do it in right now. I have a baby to bathe - who is COVERED in pasta - laundry to fold, and dinner to eat. Stay tuned, kids (Well, Max, since your the only one who reads this.).

Diagnosis.

Hypotonia is a condition of abnormally low muscle tone (the amount of tension or resistance to movement in a muscle), often involving reduced muscle strength. Hypotonia is not a specific medical disorder, but a potential manifestation of many different diseases and disorders that affect motor nerve control by the brain or muscle strength. Recognizing hypotonia, even in early infancy, is usually relatively straightforward, but diagnosing the underlying cause can be difficult and often unsuccessful. The long-term effects of hypotonia on a child's development and later life depend primarily on the severity of the muscle weakness and the nature of the cause. Some disorders have a specific treatment but the principal treatment for most hypotonia of idiopathic or neurologic cause is physical therapy and/or occupational therapy to help the person compensate for the neuromuscular disability.

Hypotonia is a condition that can be helped with early intervention.

There is currently no known treatment or cure for most (or perhaps all) causes of hypotonia, and objective manifestations can be life long. The outcome in any particular case of hypotonia depends largely on the nature of the underlying disease. In some cases, muscle tone improves over time, or the patient may learn or devise coping mechanisms that enable him to overcome the most disabling aspects of the disorder. However, hypotonia caused by cerebellar dysfunction or motor neuron diseases can be progressive and life-threatening.

We shall see where this now leads. At least it's a diagnosis, and now we treat it.

Octuplets.

In a day and age where it is perfectly acceptable to openly discuss ones' ability or inability to have children, it's not surprising to hear about a woman giving birth to multiples. It is however,surprising, to see her entire story unravel after wanting privacy and having her name not released immediately after the birth. Her own mother blabbed about her to the media just two days ago. I have so many issues with this woman and her story. But the biggest being - she has FOURTEEN children under the age of 7. She is unemployed. She is single, which isn't necessarily a problem. But how does one who is unemployed raise 14 children financially, never mind emotionally?
I'm a far cry from infertile - God knows - but I read the blogs of several woman who have struggled beyond anything I could ever imagine to have children. Some still haven't achieved motherhood. It's a huge slap in the face to anyone who cannot have children to turn on the news and see that a woman has given birth to 8 babies. It's an even bigger slap in the face to read that she has 6 other children, and that her Doctor who doesn't have the balls to come forward, knew this and knew that he was going to transfer 8 embryos into her. He clearly was in this for the money, as is the mother. She plans to raise her children with the help of major companies and being paid for interviews. She already fails as a mother in my opinion. All 14 of her children are from the same sperm doner, who begged her to NOT have any more children with his genetic make up after the last of her firt 6 children were born. She clearly has no respect for the man who gave her 6 children, she decided she needed another 8. There's also no way in hell that she was only 'trying for one more girl' and ended up with 8. She clearly has no problems conceiving or carrying, she just seems to have trouble getting herself pregnant without being injected with the other necessary half to make a baby.
I'm disgusted by this situation. I'm sad for those babies, who will never be able to have the amount of attention they need from their mother. This woman is no Michelle Duggar (that's a whole post in itself) and she doesn't have the resources and family support required here. I really think that those 8 babies should be adopted out to families who cannot have children. But then again, what the hell do I know anyway?